More information about insulinomas
Insulinoma Support Groups
Diagnosed
If your insulinoma has been biochemically diagnosed (by bloods), please join our Facebook group: Insulinoma - a rare type of functional neuroendocrine tumour
Malignant
If you have been diagnosed with a malignant insulinoma, please join our Facebook group: Malignant Insulinoma
Suspected
If your insulinoma is suspected and you are awaiting a diagnosis, please join our Facebook group: Suspected Insulinoma
Insulinoma Community & Awareness
For the latest articles, research and more information about insulinomas visit our
Facebook Community Awareness page
Guidelines and Articles
Metastatic insulinoma—outcomes in the current era
Umesh Masharani, Sheila Lindsay, Farhana Moon, Alan Paciorek, Emily Bergsland
The Oncologist, oyae275, https://doi.org/10.1093/oncolo/oyae275
Published: 30 October 2024
European Neuroendocrine Tumor Society (ENETS)
The primary aim of ENETS is to integrate basic and clinical research with teaching and to establish guidelines for the diagnosis and therapy of gastroenteropancreatic neuroendocrine tumors (GEP NETs).Neuroendocrine Cancer UK aims to support and inform patients and families from diagnosis, enabling access to the best care and treatment, whilst stimulating Neuroendocrine Cancer research, increasing national awareness and influencing improvements in outcomes.
If you or someone close to you have been affected by Neuroendocrine Cancer and you’ve got questions, our Specialist Nurse, Nikie can to help. Talk to the helpline team on our helpline, which is free and confidential – 0800 434 6476 or visit Ask the Nurse - Neuroendocrine Cancer UK
UKINETs (UK & Ireland Neuroendocrine Tumour Society) represents scientists, nurses, allied health care workers and clinicians involved in providing services to Neuroendocrine Cancer patients.
AMEND (Association for Multiple Endocrine Neoplasia Disorders) Support and information for people affected by Multiple Endocrine Neoplasia Disorders and associated endocrine tumours and syndromes Telephone: 01892 516076
Cancer Research UK - Insulinomas are rare neuroendocrine tumours (NETs) that start in the insulin making cells of the pancreas. They are a type of functioning NETs of the pancreas.