Contact Us

Get in touch

Contact Insulinoma Charity UK with questions about our support, information and activities, or to discuss fundraising, volunteering, partnerships and media enquiries.

Email: insulinoma@googlemail.com

You can also use the contact form below. Our charity is run entirely by volunteers, so please allow time for a response.

Find a support group

Our Facebook groups connect people with shared experiences of an insulinoma and related conditions. Choose the group that best matches your situation.

Diagnosed insulinoma

For people whose insulinoma has been confirmed through blood tests.
Visit the diagnosed insulinoma group.

Malignant or metastatic insulinoma

For people diagnosed with a malignant or metastatic insulinoma.
Visit the malignant insulinoma group.

Suspected insulinoma

For people being investigated for a possible insulinoma who do not yet have a confirmed diagnosis.
Visit the suspected insulinoma group.

Insulinomatosis or NIPHS

For people diagnosed with insulinomatosis or NIPHS.
Visit the insulinomatosis and NIPHS group.

Bereavement support

For people who have lost a loved one to an insulinoma.
Visit the bereavement support group.

Facebook may ask you to sign in before you can view or request to join a group. If you are unsure which group is right for you, please email us.

Our groups provide peer support. For advice about your symptoms, diagnosis or treatment, contact your healthcare team.

Send an enquiry

Use this form to ask a question or share feedback. Your email address and message are required so that we can respond. Your name and country are optional.

For medical advice, please contact your healthcare team. If someone needs emergency medical help, call 999.