Our stories

“Eat a bar of chocolate and take two aspirin”. This was the advice I was given at A&E following a blackout whilst driving.

Marjorie Brown from Vancouver, Canada, talks about her insulinoma which was surgically removed in February 2012.

"The first “funny turn” happened when I was at home and my brother was downstairs. I became confused and couldn’t understand the noises he made and what he was doing."

Radiolabelled Octrotide (RLO), when things started to wrong again...

Laura, from Worcestershire, UK, was diagnosed with two insulinomas in January & March 2010, and one further insulinoma July 2011.

"I was reading my e-mails and ended up “getting lost in my computer”. It was like being in the middle of a computer game, but only for real."

"I wasn’t feeling too good and I knew I needed to eat something.  I had an empty vagueness around me. Something was wrong."

"I would start to sweat, my lips would tingle, hands started to shake. And then I would feel like I was in a dream."

"One evening when visiting a hospital, as I entered casualty I felt ‘weird’ and collapsed into an empty wheelchair, promptly to be ejected from the chair bodily by a passing porter."