My story of my Insulinoma began when I was 44 – 2019. I didn’t know I had Insulinoma at the time and thought all my symptoms were due to perimenopause, as I was diagnosed as such.
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“Those words were both terrifying and strangely reassuring…”
It’s confirmed as an insulinoma
Marjorie Brown from Vancouver, Canada, talks about her insulinoma which was surgically removed in February 2012.
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"I was reading my e-mails and ended up “getting lost in my computer”. It was like being in the middle of a computer game, but only for real."
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"The first “funny turn” happened when I was at home and my brother was downstairs. I became confused and couldn’t understand the noises he made and what he was doing."
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Laura, from Worcestershire, UK, was diagnosed with two insulinomas in January & March 2010, and one further insulinoma July 2011.
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"One evening when visiting a hospital, as I entered casualty I felt ‘weird’ and collapsed into an empty wheelchair, promptly to be ejected from the chair bodily by a passing porter."
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Radiolabelled Octrotide (RLO), when things started to wrong again...
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"I would start to sweat, my lips would tingle, hands started to shake. And then I would feel like I was in a dream."
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"I wasn’t feeling too good and I knew I needed to eat something. I had an empty vagueness around me. Something was wrong."
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“Eat a bar of chocolate and take two aspirin”. This was the advice I was given at A&E following a blackout whilst driving.
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