After a long and difficult journey to diagnosis, Alex was eventually diagnosed with an insulinoma following severe hypoglycaemia and years of being misunderstood. Her experience of misdiagnosis and life saving surgery drives her passion for raising awareness and supporting others affected by this rare condition.
Read MoreDanielle Walker is a 37 year old mother of three whose life changed suddenly after unexplained hypoglycaemic episodes led to a diagnosis of a metastatic insulinoma and the progression to an aggressive small cell metastatic neuroendocrine cancer.
Read MoreMy story of my Insulinoma began when I was 44 – 2019. I didn’t know I had Insulinoma at the time and thought all my symptoms were due to perimenopause, as I was diagnosed as such.
Read More“Those words were both terrifying and strangely reassuring…”
It’s confirmed as an insulinoma
Marjorie Brown from Vancouver, Canada, talks about her insulinoma which was surgically removed in February 2012.
Read More"I was reading my e-mails and ended up “getting lost in my computer”. It was like being in the middle of a computer game, but only for real."
Read More"The first “funny turn” happened when I was at home and my brother was downstairs. I became confused and couldn’t understand the noises he made and what he was doing."
Read MoreLaura, from Worcestershire, UK, was diagnosed with two insulinomas in January & March 2010, and one further insulinoma July 2011.
Read More"One evening when visiting a hospital, as I entered casualty I felt ‘weird’ and collapsed into an empty wheelchair, promptly to be ejected from the chair bodily by a passing porter."
Read MoreRadiolabelled Octrotide (RLO), when things started to wrong again...
Read More"I would start to sweat, my lips would tingle, hands started to shake. And then I would feel like I was in a dream."
Read More"I wasn’t feeling too good and I knew I needed to eat something. I had an empty vagueness around me. Something was wrong."
Read More“Eat a bar of chocolate and take two aspirin”. This was the advice I was given at A&E following a blackout whilst driving.
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