Tee Clarke, 32, from the Central Coast of New South Wales, has been living with severe hypoglycaemia caused by NIPHS (Non-Insulinoma Pancreatogenous Hypoglycaemia Syndrome), also known as nesidioblastosis. Her blood sugar levels could fall as low as 1.9 mmol, sometimes up to 18 times a day, including during sleep. Medications brought significant side effects and still failed to control the condition. After exhausting medical options, Tee made the life-changing decision to undergo a near-total pancreatectomy in February under the care of her specialist team at St Vincent’s Hospital in Darlinghurst, Sydney. Just four weeks later, her recovery has been remarkable. Her blood sugars are now stable, she has been able to stop powerful medications, and she says she feels better than she has in years. In this honest and hopeful account, Tee shares what led to her decision, what the surgery and recovery were really like, and why, despite the risks, it has given her a new sense of freedom.
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