https://insulinoma.co.uk/our-stories daily 0.75 2026-03-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/53288493-519e-4ace-85b0-80f77e130308/Blank_Banner.jpg Our stories https://insulinoma.co.uk/our-stories/teeclarke monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/alexspencerbrown monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/daniellewalker monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2024/1/30/debbies-story monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2020/2/21/paul-roberts-story monthly 0.5 2026-05-19 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1582318336583-YH9YMKOSXZQAJAMS8S3S/Robotic_surgery.jpg Our stories - Paul’s Story My surgeon told me that robotic surgery was the best option. https://insulinoma.co.uk/our-stories/2016/12/3/marjories-story monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2016/12/3/paulas-story monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2016/12/3/fleurs-story monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2016/12/3/lauras-story monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2016/12/3/grahams-story monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2016/12/3/paulas-story-part-2 monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2016/12/3/kims-story monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/2016/12/3/wendys-story monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/enola-wright monthly 0.5 2026-05-19 https://insulinoma.co.uk/our-stories/tag/severe+hypoglycaemia monthly 0.5 https://insulinoma.co.uk/our-stories/tag/Nesidioblastosis monthly 0.5 https://insulinoma.co.uk/our-stories/tag/Non-Insulinoma+Pancreatogenous+Hypoglycaemia+Syndrome monthly 0.5 https://insulinoma.co.uk/our-stories/tag/Insulinoma monthly 0.5 https://insulinoma.co.uk/our-stories/tag/NIPHS monthly 0.5 https://insulinoma.co.uk/faqs daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1d4a6875-6419-4a45-9cf1-91cd8e3a66ed/Blank_Banner.jpg FAQs https://insulinoma.co.uk/contact daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/2ff4ce27-a3f1-488a-a603-548db290b7e2/Blank_Banner.jpg Contact https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1480773863135-7OX5Q5NHQM9QCZ3OPB1I/image-asset.jpeg Contact https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1480773863135-7OX5Q5NHQM9QCZ3OPB1I/image-asset.jpeg Contact https://insulinoma.co.uk/scanning-insulinoma daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Scanning for insulinomas https://insulinoma.co.uk/insulinoma-care daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Insulinoma care https://insulinoma.co.uk/home daily 0.75 2026-06-08 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Insulinoma Support Network - Home https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/ae012fec-e57b-40d4-8b28-df1faba3dfc4/GO+SKYDIVE+%282%29.jpg Insulinoma Support Network - Home Download the book https://insulinoma.co.uk/insulinoma-symptoms daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Insulinoma Symptoms https://insulinoma.co.uk/terms-and-conditions daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Terms and Conditions https://insulinoma.co.uk/how-to-manage-hypoglycemia daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg How to manage Hypoglycaemia https://insulinoma.co.uk/useful-resources daily 0.75 2026-05-19 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/e8cda8c4-6f38-4fb0-b831-4e208bb16b79/Blank_Banner.jpg Useful resources https://insulinoma.co.uk/about-insulinomas daily 0.75 2026-05-19 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/17d7c597-66e3-4689-8975-0bf9c72e2452/Blank_Banner.jpg About insulinomas https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1480767558723-988JBQQYJBLXT00E2IH9/image-asset.jpeg About insulinomas https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/999356d0-017b-42a0-a9a4-c7b8839839bc/Carbs.jpg About insulinomas Insulinoma diet https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1480767558723-988JBQQYJBLXT00E2IH9/image-asset.jpeg About insulinomas https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/999356d0-017b-42a0-a9a4-c7b8839839bc/Carbs.jpg About insulinomas Insulinoma diet https://insulinoma.co.uk/insulinoma-diagnosis daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Insulinoma Diagnosis https://insulinoma.co.uk/tests-for-insulinomas daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Tests for insulinomas https://insulinoma.co.uk/insulinoma-diet daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Insulinoma diet https://insulinoma.co.uk/insulinoma-surgery daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Insulinoma surgery https://insulinoma.co.uk/insulinomas-treatments daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Insulinomas treatments https://insulinoma.co.uk/insulinomacharity daily 0.75 2026-06-03 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/c0f0e736-e92e-495e-9e1f-8db1638ae487/Blank_Banner.jpg Insulinoma Charity https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/41716eda-3c2c-48cc-92a5-d7b88ec9be8c/Justgiving.jpg Insulinoma Charity - Make it stand out Donate now! https://www.justgiving.com/insulinomacharityuk Thank-you. https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/41716eda-3c2c-48cc-92a5-d7b88ec9be8c/Justgiving.jpg Insulinoma Charity - Make it stand out Donate now! https://www.justgiving.com/insulinomacharityuk Thank-you. https://insulinoma.co.uk/news daily 0.75 2026-06-13 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/9493ee6e-7216-49d8-9d36-4bb505209945/Blank_Banner.jpg Insulinoma awards https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/ae012fec-e57b-40d4-8b28-df1faba3dfc4/GO+SKYDIVE+%282%29.jpg Insulinoma awards - Make it stand out In loving memory of Callum Lynch https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/b785927e-0fc2-44dc-8b8f-5c903d50f251/Champion2.jpg Insulinoma awards Coronation Champion Award https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/bf80c15e-37e2-4c55-8bea-ae30828a1079/POL2.png Insulinoma awards Enola Wright 2121st recipient of Points of Light Award. https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/e71769cf-33ec-4b91-9612-1943937d5345/CharityPic2.jpg Insulinoma awards Insulinoma Charity UK (ICUK) https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/29a7ea5b-54d3-4e00-bbce-80a7ea43f905/King+Charles+Birthday+Honours.jpg Insulinoma awards - Make it stand out ENOLA WRIGHT AWARDED BRITISH EMPIRE MEDAL IN KING’S BIRTHDAY HONOURS FOR SERVICES TO THE INSULINOMA COMMUNITY Enola Wright, Founder and Chair of Insulinoma Charity UK, from West Mersea, Essex, has been awarded the British Empire Medal (BEM) in His Majesty The King’s Birthday Honours 2026 as Founder, Insulinoma Charity UK, for services to the insulinoma community. Enola founded the Insulinoma Support Network in 2007 following her diagnosis with a metastatic insulinoma. An insulinoma is a rare neuroendocrine tumour with an incidence of approximately 1 to 4 cases per million people each year. The condition can cause severe and potentially life-threatening hypoglycaemia and, for some individuals, may become a life limiting illness. Over the past 19 years, her work has helped patients and families access trusted information, peer support and advocacy. She has also played a leading role in pioneering patient led research to improve understanding of insulinoma and the experiences of those living with an insulinoma. Despite its rarity, the Insulinoma Support Network now supports more than 2,845 people worldwide through dedicated online support groups for individuals with suspected insulinoma, biochemically diagnosed insulinoma, metastatic insulinoma, insulinomatosis, NIPHS and bereavement. At the time of her diagnosis, Enola wanted to meet just one other person with an insulinoma. There was no dedicated support organisation in the United Kingdom for people affected by an insulinoma and, beyond medical journals and academic literature, very little information was available to patients and their families. Determined that others should not face the same isolation, uncertainty and lack of information that she experienced, Enola established what has become the largest insulinoma peer support community in the world. In 2023, Enola founded Insulinoma Charity UK, the first UK registered charity dedicated exclusively to supporting people affected by an insulinoma. The charity is entirely volunteer led, with no paid staff, salaries or overheads. Every volunteer has a personal experience of being diagnosed with an insulinoma. This shared lived experience shapes the charity’s support, advocacy, awareness and research activities, ensuring that patients remain at the heart of everything it does. Her contribution has previously been recognised through the Prime Minister’s Points of Light Award and as one of 500 Coronation Champions selected by the Royal Voluntary Service. She has also served as an Insulinoma Patient Expert for the National Institute for Health and Care Excellence (NICE), helping to ensure the patient voice is represented in national healthcare decision making. Commenting on the award, Enola said: “I am deeply honoured and humbled to receive the British Empire Medal. When I founded the Insulinoma Support Network in 2007, I was searching for something I could not find myself: another person who understood what it was like to live with an insulinoma. My hope was simply to connect people and ensure no one felt as alone as I did at diagnosis. I never imagined that it would grow into the largest insulinoma peer support community and the UK’s first charity dedicated exclusively to supporting people affected by an insulinoma. This award belongs to every patient, to those we have lost to this disease, to every carer, family member, volunteer, healthcare professional, researcher, fundraiser and supporter who has shared this journey and helped improve the lives of people affected by an insulinoma. I would also like to acknowledge my dear friend Paula Davis, who nominated me for this award. Paula was the first person I met face to face living with an insulinoma, made possible through the Insulinoma Support Network. Our friendship spanned 18 years, during which we supported one another through the many challenges of living with this rare condition. Paula became a founding trustee of Insulinoma Charity UK and a tireless advocate for the insulinoma community. Sadly, she died from a metastatic insulinoma on 14 February 2026. I am humbled to accept the British Empire Medal in her memory, and in recognition of all those we have lost to this disease. Most importantly, I hope this recognition helps raise awareness of insulinomas and the challenges faced by people living with rare diseases. No one should have to face a rare diagnosis alone.” Despite facing ongoing significant health challenges of her own, including a metastatic insulinoma, a second unrelated cancer, heart disease, chronic kidney disease, autoimmune disease and achalasia, Enola has dedicated the past 19 years to ensuring that no one affected by an insulinoma has to face the journey alone, providing support, information, advocacy and a sense of community to thousands of patients and families. https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/ae012fec-e57b-40d4-8b28-df1faba3dfc4/GO+SKYDIVE+%282%29.jpg Insulinoma awards - Make it stand out In loving memory of Callum Lynch https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1767869063550-RRVP5D6QB7CL1V8EDWVO/The+Walker+Family+.jpg Insulinoma awards - The Walker Family .jpg Screenshot https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1766330358829-RNB2Y9JVQILQZO1UIWGI/Dec2005_1.jpg Insulinoma awards - Dec2005_1.jpg Screenshot https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1722934522091-ZF8XSC9FGOQTPK22HPDT/AugustCover2024.jpg Insulinoma awards - AugustCover2024.jpg https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1714578778460-WCD37XI4L6AL2QAZJGPR/FrontNews.jpg Insulinoma awards - Insulinoma Newsletter Issue 1 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/b785927e-0fc2-44dc-8b8f-5c903d50f251/Champion2.jpg Insulinoma awards Coronation Champion Award https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/bf80c15e-37e2-4c55-8bea-ae30828a1079/POL2.png Insulinoma awards Enola Wright 2121st recipient of Points of Light Award. https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/e71769cf-33ec-4b91-9612-1943937d5345/CharityPic2.jpg Insulinoma awards Insulinoma Charity UK (ICUK) https://insulinoma.co.uk/insulinomatosis/niphs daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Insulinomatosis/NIPHS https://insulinoma.co.uk/scientific-literature daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Scientific Literature https://insulinoma.co.uk/suspected-insulinoma daily 0.75 2024-08-01 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/ec5dc157-3373-4947-9364-a2c9cb0b9562/IMG_9434.jpg Suspected Insulinoma https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/ec5dc157-3373-4947-9364-a2c9cb0b9562/IMG_9434.jpg Suspected Insulinoma https://insulinoma.co.uk/quiz-night daily 0.75 2026-01-10 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1a1a7406-42b3-47af-8f0d-a23931ac3b6d/Blank_Banner.jpg Quiz Night https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/89cd01f6-dea6-453a-87c2-16773d34f400/Charitynight+.jpeg Quiz Night https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/4ed98ce1-9e07-4c48-80d7-9572824ccf99/Callum.jpeg Quiz Night - Make it stand out In loving memory of Callum Lynch https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/89cd01f6-dea6-453a-87c2-16773d34f400/Charitynight+.jpeg Quiz Night https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/4ed98ce1-9e07-4c48-80d7-9572824ccf99/Callum.jpeg Quiz Night - Make it stand out In loving memory of Callum Lynch https://insulinoma.co.uk/home-page daily 1.0 2026-06-13 https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/53206afc-eef0-42ae-9df7-8209b6aa8697/Insulinoma_Charity_Group.jpg https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/36039c6a-6357-4d98-a758-0d53d32bffb3/Suspected_Icon.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/80645e29-ef1c-4b52-afbd-eeddc989348b/Diagnosis_Icon.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/8ee48104-edfc-455c-9824-3e0974ad94b4/Treatment_Icon.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/f27f718c-3508-4658-bde9-66d94f051000/Recovery_Icon.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/91562d8e-2492-4e51-8847-92bd33e5d07b/Hypoglaecemia_Icon.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1768654719950-WOTAAUFYKVHZ26BCH654/Alex.JPG https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/1595790229209-5ZVVRCYPAK8AUNYYQ2ZU/Lu1.jpg https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/b86b1bc4-f486-4217-9925-ef68beb0af27/Resources_Icon.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/cd443ed0-c4c2-4e2d-a3f6-da0cf5ba5ae0/Calendar_Icon.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/c5268b8f-1983-498f-9cca-129a37c3c990/Facebook_Icon.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/bdb34a2c-be1b-4d3f-9f2f-e7d55006031d/Screenshot+2026-06-08+at+08.52.27.png https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/06a9883c-2346-4d51-9c93-d906445258b1/King+Charles+Birthday+Honours.jpg https://images.squarespace-cdn.com/content/v1/5842ac3815d5dbb709f30042/c5487432-789b-4416-99a1-676baeff6150/SupportUs_Icon.png